Gynae Cancer Survivors & Loved Ones - Power of Narrative Phase 2
As many of you are aware i Co Lead GO Further PPIE and we are currently working on a really exciting project and would love to hear from you or a loved one who has been affected by a Gynae Cancer.
GO Further PPIE is a co-produced Public and Patient Involvement and Engagement (PPIE) group led by volunteers. Our core interest is to improve fair care and research in gynae cancers, especially in underserved communities.
Our Power of Narrative Initiative is a group of projects that ultimately aim to change health-related behaviours of both public members and professionals through powerful patient stories.
As we begin phase 2 of the initiative based on the following themes
*The male perspective as a carer and loved one
*Quality of life and life after cancer (also known as survivorship, e.g. surgical menopause)
*Fear and anxiety of recurrence; living with cancer or incurable diseases
*Risk reduction and preventative surgery relating to Lynch syndrome or familial ovarian cancer.
*In parallel, we are also looking for perspectives of primary care doctors who would like share their own challenges of early diagnosis in ovarian cancer.
we are looking to hear from;
*Anyone with a lived experience of a Gynae Cancer
*Anyone who has cared for someone with a Gynae Cancer
*Healthcare Professionals working in Gynaecology Oncology
*Researchers in Gynaecology Oncology
If you are interested in taking part in Phase 2 of the Power of Narrative, simply
*email [email redacted]
*scan the QR code in the poster to join our mailing list.
Please do also feel free to share this with colleagues, friends and family members who you may think would like to take part.
#GyneCancers
Elaine Leung
Kamana Subba
Ameena Westwood
Kafilla Munir
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