hEDS & HSD Patients - Diagnosed After Social Media Discovery
Reporter looking to interview people with hEDS
Hello, people of r/EDS! My name is Elizabeth Anne Brown and I'm a science reporter working on a feature article about hypermobile Ehlers Danlos Syndrome and hypermobility spectrum disorder. (I'll include a link to my website in the comments so you know I'm legit!) I've interviewed plenty of doctors and researchers but am looking to connect with a few patients willing to share their perspective with me.
Please drop me a DM or a comment below if you 1) learned about hEDS/HSD through social media; 2) have since received a formal diagnosis of hEDS/HSD; 3) would be willing to be interviewed on the record for a major media outlet with your first and last name.
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